Comments for Clandestine21's Weblog http://clandestine21.wordpress.com Just another WordPress.com weblog Fri, 05 Sep 2008 11:41:17 +0000 http://wordpress.com/ hourly 1 Comment on Cholinergic Urticaria by Cholinergic Urticaria http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-23 Cholinergic Urticaria Fri, 05 Sep 2008 11:41:17 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-23 Hello, I am sorry to hear you are also dealing with cholinergic urticaria. I also have had this condition for about 7 years on/off. I have a website, with lots of cholinergic sufferers from around the world. We have a forum where we can give updates and share info about the condition. You may want to check it out. http://www.heathives.com http://www.heathives.com/forum Hello,

I am sorry to hear you are also dealing with cholinergic urticaria. I also have had this condition for about 7 years on/off.

I have a website, with lots of cholinergic sufferers from around the world. We have a forum where we can give updates and share info about the condition. You may want to check it out.

http://www.heathives.com
http://www.heathives.com/forum

]]> Comment on Cholinergic Urticaria by Sbuxjunkie http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-19 Sbuxjunkie Tue, 08 Jul 2008 02:29:40 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-19 From what you noted - exercise induced hives - you may not have cholinergic urticaria. There is a diagnosis for people who only have hives, itching, airway issues during exercise alone. It is called exercise induced anaphylaxis, and while the anaphylaxis sounds pretty intense, it may be worth seeing a good allergy/immunologist for a differential diagnosis. I went to one just recently for the same issue(anytime I break a sweat, I break out - I thought I was allergic to my own sweat!). Thank God they didn't think I was crazy. After some allergy testing and a thorough discussion of my signs and symptoms, he determined that I have exercise induced anaphylaxis - which is not the same as cholinergic urticaria. (I had been diagnosed with that before). There are distinct differences and management is different. You may want to see a specialist - I now have to carry an epi-pen (like people allergic to bees and peanuts). I sort of feel stupid, because what am I going to tell someone I go running with? But, its better than the alternative. Hope this helps! Good luck. From what you noted – exercise induced hives – you may not have cholinergic urticaria. There is a diagnosis for people who only have hives, itching, airway issues during exercise alone. It is called exercise induced anaphylaxis, and while the anaphylaxis sounds pretty intense, it may be worth seeing a good allergy/immunologist for a differential diagnosis. I went to one just recently for the same issue(anytime I break a sweat, I break out – I thought I was allergic to my own sweat!). Thank God they didn’t think I was crazy. After some allergy testing and a thorough discussion of my signs and symptoms, he determined that I have exercise induced anaphylaxis – which is not the same as cholinergic urticaria. (I had been diagnosed with that before). There are distinct differences and management is different. You may want to see a specialist – I now have to carry an epi-pen (like people allergic to bees and peanuts). I sort of feel stupid, because what am I going to tell someone I go running with? But, its better than the alternative. Hope this helps! Good luck.

]]> Comment on Cholinergic Urticaria by Maria http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-16 Maria Sun, 04 May 2008 18:33:45 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-16 I have the same disease. Mine comes on with exercise, and especially if I take a shower immediately after exercise. It also comes on if I eat certain spicy foods (though not all spicy foods. It is really a pain. It started for me in 2003 and has gotten progressively worse. I am kind of a stressed out person, so I wonder if that has anything to do with my development of the disease. Anyway, Loratadine worked well for, although I can't take it now because I am pregnant. It didn't make me tired, and I am very sensitive to medicines. Good luck and let me know if the are any other anti-histimines that work well. I have the same disease. Mine comes on with exercise, and especially if I take a shower immediately after exercise. It also comes on if I eat certain spicy foods (though not all spicy foods. It is really a pain. It started for me in 2003 and has gotten progressively worse. I am kind of a stressed out person, so I wonder if that has anything to do with my development of the disease. Anyway, Loratadine worked well for, although I can’t take it now because I am pregnant. It didn’t make me tired, and I am very sensitive to medicines. Good luck and let me know if the are any other anti-histimines that work well.

]]> Comment on Cholinergic Urticaria by Guy from VA http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-15 Guy from VA Mon, 28 Apr 2008 15:10:54 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-15 I just recently developed this particular condition...now when I work out I get hives down both arms that last 30 minutes or so. I took a hot bath because my back was sore and had hives from shoulders to calves for 90 minutes and a slightly elevated heart rate. This isn't much fun. Has anything in particular worked for you? I have been taking Zyrtec in the mornings but it hasn't really helped too much. Benadryl after an attack has worked pretty well and is cheaper...if I take one I don't get drowsy, two knocks me out. I just recently developed this particular condition…now when I work out I get hives down both arms that last 30 minutes or so. I took a hot bath because my back was sore and had hives from shoulders to calves for 90 minutes and a slightly elevated heart rate. This isn’t much fun.

Has anything in particular worked for you? I have been taking Zyrtec in the mornings but it hasn’t really helped too much. Benadryl after an attack has worked pretty well and is cheaper…if I take one I don’t get drowsy, two knocks me out.

]]> Comment on Cholinergic Urticaria by Crystal http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-12 Crystal Mon, 17 Mar 2008 15:47:26 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-12 I have the same condition. Can I ask what antihistamine you are taking for this? I am on Allegra and it does nothing, my doc did not try anything else. It is annoying and embarassing to be covered in hives as I try to work out. Thanks! I have the same condition. Can I ask what antihistamine you are taking for this? I am on Allegra and it does nothing, my doc did not try anything else. It is annoying and embarassing to be covered in hives as I try to work out. Thanks!

]]> Comment on Irrational Thoughts by calliegetmad http://clandestine21.wordpress.com/2008/03/07/irrational-thoughts/#comment-11 calliegetmad Sat, 08 Mar 2008 04:24:04 +0000 http://clandestine21.wordpress.com/?p=15#comment-11 I felt like laughing and crying for a moment... I am comparable and sometimes really do not understand how someone can reject a hug (I am not a frequent hugger ;-)). I felt like laughing and crying for a moment… I am comparable and sometimes really do not understand how someone can reject a hug (I am not a frequent hugger ;-) ).

]]> Comment on About by bibomedia http://clandestine21.wordpress.com/about/#comment-7 bibomedia Tue, 04 Mar 2008 22:16:48 +0000 #comment-7 :) :)

]]> Comment on Cholinergic Urticaria by The Planner http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-4 The Planner Fri, 18 Jan 2008 16:21:00 +0000 http://clandestine21.wordpress.com/2008/01/18/cholinergic-urticaria/#comment-4 I have suffered from the same condition as well. When I was put on daily allergy meds for an unrelated allergy a few years ago, it was almost completely effective in battling my "exercise allergy." Rarely, I have to supplement with old school antihistamines. It might be worth experimenting with a brand or two to see if you can avoid the drowsy ones. I have suffered from the same condition as well. When I was put on daily allergy meds for an unrelated allergy a few years ago, it was almost completely effective in battling my “exercise allergy.” Rarely, I have to supplement with old school antihistamines. It might be worth experimenting with a brand or two to see if you can avoid the drowsy ones.

]]> Comment on My Sister by Irish chick http://clandestine21.wordpress.com/2008/01/17/my-sister/#comment-2 Irish chick Fri, 18 Jan 2008 00:26:00 +0000 http://clandestine21.wordpress.com/2008/01/17/my-sister/#comment-2 wow, this is deep. i think you should your sister a little time to cool off, as well as you. mull over what you're going to say to her and don't dwell on what already has been done. hope that helps wow, this is deep. i think you should your sister a little time to cool off, as well as you. mull over what you’re going to say to her and don’t dwell on what already has been done. hope that helps

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